One Small Step for PCOS – One Giant Leap for Patient Empowerment!
I’m super excited to introduce you to this incredible group of women! This is an epic moment in my life and I hope someday yours too! This photo was taken at our first ever Patient Advisory Meeting held in Atlanta, Georgia and these ladies are true pioneers in healthcare. Like many of you, these women are survivors and they are brave enough to join me with passion to change the standard of care for women’s health, starting with PCOS. They have already started rolling up their sleeves to help me create the delivery system for Precision Medicine which will bring women’s health to the forefront of innovation in medicine.
We started the process by sending out a single email to 1000 Atlanta area women diagnosed with PCOS and received such an overwhelming response. Choosing just 10 women was the hardest thing I’ve had to do so far but here we are with an incredible group of women who have made a commitment to change. Our motto is No Cysters Left Behind, because not one of us wants to see another woman suffer at the hands of PCOS.
Women have been underserved for far too long in healthcare and as I’ve worked on this project I have discovered exactly why women’s health is in the state it is in! It has become crystal clear to me why we need more women involved in science, labs, medicine, all the way up to the decision makers. I am optimistic that we finally have the opportunity to do something! These incredible women will be advising me every step of the way as I work with the myAva team to build the delivery system that brings Precision Medicine to Women’s Health, starting with PCOS.
I’ll let you in on a little secret, with all the talk you hear in the news about Precision Medicine these days you’d think it was already accessible, but the fact of the matter is that no one knows how to deliver Precision Medicine. Clinics are not set up for it. The learning curve is steep at every step of the way for every group trying to tackle the issues with disrupting an entire heatlhcare system. People are as afraid of it as they are excited by the prospect of it. That’s what makes this an optimal time for patients to get involved at the grassroots level – while protocols and systems are being designed. Precision medicine has the potential to level the playing field and women, as a patient group of their own, are done taking a back seat. One thing I am certain of, 5 years from now a trip to the doctor is not going to look like it does today.
Stay tuned as these women begin their journey and help design a new style of healthcare they will be sharing stories with you along the way. Like with everything new, it might be a bumpy ride but we all think it’ll be worth it in the end!