Endometriosis is an Invisible Illness: An interview with Rachel Meeks
One of the things that I’d like to highlight about Endometriosis is that it is often called an “invisible disease”. General onlookers can’t see the pain being experienced, and albeit, are often not as supportive or understanding as they could be.
This is why I find the blog by Rachel Meeks so timely – her blog aptly titled “Do I Look Sick” discusses the challenges of diseases and disorders that aren’t quickly visible to others.
I sent Rachel a few questions to ask her about Endometriosis, the idea of invisible disease, and what life is like as a health advocate.
My name is Rachel Meeks. I have Endometriosis, an incurable pain condition, and IBS, a digestive illness. I’m also a professional screenwriter and video editor, wife, and animal rescuer. Illness doesn’t define me but it’s just as much a part of me as my arms, legs, hair, and eyes.
What does the term #EndoSister mean to you?
#Endosister means I’m not alone – I have a big family I never knew about.
Why is Endometriosis Awareness Month important to you?
There is nothing more important than awareness – self, spiritual, medical, all of it. We should always seek to understand others – March is a time when others try to understand me.
What do you wish everyone knew about life with endo?
Endo acts fake. Pain one minute, gone the next – But I’m not faking.
As a Health Advocate, what do you want to accomplish for those struggling with endo?
Awareness is the most important thing. I want a world where we don’t have to hide endo. People understand, doctors study it,
that all comes from awareness.
What is missing from our system for those with invisible disease?
There’s too much division. We should all identify as Health Advocates but many go by disease. This leads to questioning what counts and what doesn’t, and an unnecessary struggle to find your home team. Unity!