My poor neglected baby – Hormone Soup! It is probably hard for you to believe that my blog is one of the true loves of my life! Talking out in the open about hormones has led to so many amazing experiences for me. Including leading me to another of the loves of my life – working on disrupting women’s health from the patient side of things! I truly believe the only way we can make the changes we want to see in women’s health is to create it ourselves. So even though it seems like I’ve pushed my beloved Hormone Soup to the side, it’s been for a good cause.
I’ve been working on the most exciting project I’ve ever been involved in – something I think you will really like to hear about. Through my blogging efforts I’ve learned so much about women’s health, especially of course hormone, sexual and reproductive health but also delved into the latest innovations happening in healthcare like precision medicine or personalized medicine.
I bet you’ve heard of Precision Medicine? President Obama and other government leaders around the world have shone the spotlight on Precision Medicine (also referred to as Personalized Medicine). But my guess is you don’t really have a good understanding yet of what it is and how it is going to affect your life. You aren’t alone – even the experts are still trying to figure that out! Unlocking your DNA holds big promises but the focus has largely been on cancer and maybe you’ve heard of MTHFR mutation but there’s just so much more.
[pullquote align=”left|center|right” textalign=”left|center|right” width=”30%”]Would you like a molecular picture of yourself instead of constantly fighting for just one little TSH or hormone test? What about hundreds of markers that you have access to and can share your data with whomever you want? Now that’s what I’m talking about. [/pullquote] The potential benefits are huge and I really believe will lead to improved outcomes and experiences over time.
There is good news and bad news. The good news is that we are finally able to access all sorts of valuable information in your blood and urine and vagina and poo! The not so great news is that in just over a few years of analyzing that much information contained in one person we are going to need a place to store it all and it’s going to amount to 1Terabyte of data for each of us! If you can’t imagine 1TB of data here’s help:
- 50,000 trees made into paper would be needed to print out all that data!
- 250 million pages printed both sides, over 10 miles high!
- 250,000 MP3s which is about 2 years of non-stop listening!
Some people are really excited about it and even though it might sound boring and that it doesn’t relate to you I am here to tell you it does relate to you and it is all actually quite exciting. We are finally at a stage where it is possible to store and analyze this much data. And the clincher is what do we do with it? Well that’s the best part as far as I’m concerned. We can use it to inform care in terms of prevention, diagnosis and treatment. But also being at the forefront of this kind of medicine means that as new research gets published you’re the first to benefit.
So I used to wonder why no one is really doing this yet because there are a lot of people out there who know a lot more than I do and are probably more qualified. But I’ve discovered a couple reasons – this is damn hard, it takes a lot of money and a ton of guts. Another reason is that it takes a lot of collaboration with a lot of smart people to put a medical program like this together because no one has all the pieces. In my experience not many people can see the whole picture either. Over the years I have met experts who hold one super important piece of the puzzle and then there are those who know a ton about all this great science and stuff but not a damn thing about women’s health. And there’s the women’s health experts who don’t know about all the science and innovations that we could tap into. And the doctors, well in many ways even the doctors that want to innovate have their hands tied or are so busy taking care of patients there’s no way they can get all of this figured out. One day I realized this put me in a really unique position, by listening to the discussions in all of these areas over the past 2 years or so I’ve really learned where the gaps are and figured out a way to close the gap. I’ve developed an incredible network of healthcare providers, research scientists, technologists and patients that are as passionate as I am about disrupting healthcare with the latest innovations and I’m setting out to do all that and I’m getting started with the most underserved of all women’s hormone health issues – Polycystic Ovary Syndrome (PCOS).
I have so much more to tell you but I will save it for another day. If you’re interested in learning more head on over to myava.com and let me know you’ll like to stay in touch. Or drop me a line here at Hormone Soup.
If you have PCOS definitely reach out and I’ll let you know when we’re launching the program in your area.
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